Experience Journal: The Transplant Journey

  When a vital organ is damaged beyond repair, the only path to health is transplantation- replacing the dysfunctional organ with an organ from the body of an organ donor.  The experience can be physically, psychologically, and emotionally trying for patients and families, especially when the patient is a child or teen. Experience Journal, a project of the Boston Children’s Hospital psychiatry program, interviewed numerous children, teens, young adults, and parents about their experience through the transplant journey— from accepting their diagnoses to waiting for the donor organ to connecting with the donor’s family. Here are their stories, in their own words.   Accepting the Idea of Needing a Transplant Olivia, 15, kidney transplant I found out I would need a transplant on my birthday, almost three months into dialysis treatment…They were like, “We’re going to have to do a transplant. Your kidney’s not going to get better.” I cried. It was hard, like, “Oh no! My kidney’s not going to get better!” I talked to my mom sometimes about it, but I was trying to protect her feelings, so I didn’t tell her everything I felt. I talked to my therapist about how I felt. Johnny, 28, heart transplant I would say one of my personal mistakes was, in the beginning of my diagnosis with heart failure, I was hesitant to even consider getting a transplant because I was so scared of hearing that. Someone wa...
Source: Thrive, Children's Hospital Boston - Category: Pediatrics Authors: Tags: Our patients’ stories Experience Journal Pediatric Transplant Center (PTC) Source Type: news

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Fight Aging! provides a weekly digest of news and commentary for thousands of subscribers interested in the latest longevity science: progress towards the medical control of aging in order to prevent age-related frailty, suffering, and disease, as well as improvements in the present understanding of what works and what doesn't work when it comes to extending healthy life. Expect to see summaries of recent advances in medical research, news from the scientific community, advocacy and fundraising initiatives to help speed work on the repair and reversal of aging, links to online resources, and much more. This content is...
Source: Fight Aging! - Category: Research Authors: Tags: Newsletters Source Type: blogs
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Source: Fight Aging! - Category: Research Authors: Tags: Newsletters Source Type: blogs
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Source: Fight Aging! - Category: Research Authors: Tags: Newsletters Source Type: blogs
Fight Aging! provides a weekly digest of news and commentary for thousands of subscribers interested in the latest longevity science: progress towards the medical control of aging in order to prevent age-related frailty, suffering, and disease, as well as improvements in the present understanding of what works and what doesn't work when it comes to extending healthy life. Expect to see summaries of recent advances in medical research, news from the scientific community, advocacy and fundraising initiatives to help speed work on the repair and reversal of aging, links to online resources, and much more. This content is...
Source: Fight Aging! - Category: Research Authors: Tags: Newsletters Source Type: blogs
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Source: Fight Aging! - Category: Research Authors: Tags: Newsletters Source Type: blogs
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Source: Fight Aging! - Category: Research Authors: Tags: Newsletters Source Type: blogs
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Source: Fight Aging! - Category: Research Authors: Tags: Newsletters Source Type: blogs
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Source: Fight Aging! - Category: Research Authors: Tags: Newsletters Source Type: blogs
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Source: Fight Aging! - Category: Research Authors: Tags: Activism, Advocacy and Education Source Type: blogs
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Source: Fight Aging! - Category: Research Authors: Tags: Newsletters Source Type: blogs
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