Abby Clinic Update

I have updated everyone on facebook but I haven't been on here in quite some time because I have been on my first Vacation since Abby was diagnosed. I actually got to take my full 2 weeks and didn't have to spend my entire vacation at the hospital!!! It was fantastic!!! It would have been better had we have not been broke but still loving life with Kalydeco!!! So Abby has been taking Kalydeco since June 28, 2012. We went to clinic a couple of weeks ago and discovered that we had a completely new CF team! Dr was gone...fellow leaving...and nurse had a baby and not coming back. Wow!! So here is the comparison: .................FVC ...FEV1.....FEV1/FVC ....FEF 25-75....FEF25....FEF50....FEF75....PEF.....MVV....FEV1% PRED...FIV1...BMI......Sweat Cl BEFORE ,,,,,,1.53,,,1.41,,,,,,,,,92.1,,,,,,,,,,1.87,,,,,,,,,,2.89,,,,,,2.18,,,,,,,.94,,,,,3.09,,,,53.36,,,111.20,,,,,,,,,,,1.10,,,50%,,,,,,,,<100 1 YR AFTER 1.70,,,,1.56,,,,,,,,,92.8,,,,,,,,,,2.10,,,,,,,,,,3.28,,,,,,2.49,,,,,,,.97,,,,,3.81,,,,58.84,,,109.50,,,,,,,,,,,1.51,,,49.9%,,,,,,,,,88 Had to get creative to make it read easier :) So also before starting Kalydeco Abby had terrible sinus' She has had 15 surgeries all of them to do with sinus' most were polyp removal. For a while she had to have polyps removed every 3 months. Not fun!! Her last sinus surgery was Sept 2011!!! She had this awful sniffle and post drainage cough pretty much constant and since day 3 of Kalydeco NO MORE only when she is sick...
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - Category: Respiratory Medicine Authors: Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums