Looking for anyone who has tried to get Kalydeco off label

***KALYDECO OFF LABEL*** We are trying to get together some information to help CFer's in the future get the help they need. If you feel comfortable sharing your information for the benefit of our wonderful CF community please email me at [e-mail]. We are looking for anyone who has tried to get on Kalydeco off label whether successful or not. We are needing your mutations and whether you were approved or denied and any information that could be helpful. Thank you in advance for any information.

Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - July 19, 2013 Category: Respiratory Medicine Authors: JENNYC Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums