Invisible Illness or Chronic Illness? What's the Difference?

Why do we say we have an "invisible illness"? Is is because we feel invisible to people? Years ago the term "invisible illness" was rarely used. Before social media the opportunity to talk about your disease was relegated to a local support group and perhaps a caring friend or two. Illness was something you spoke to your doctor about... and that was all. I became an online illness advocate when I built my first website for those with chronic illness in 1996. As the Internet has evolved from news groups to social media, much has changed. But I have seen one continual thread: people are eager to share about their illness experiences and gain both understanding and wisdom from their peers. I established Invisible Illness Awareness Week in 2002. Why? I saw an overwhelming amount of people who were coping with their disease itself -- the symptoms, progression, medications, and medical care. But when it came to how it impacted their lives -- most specifically their relationships, they were struggling. Asking, "Who am I with this illness?" If you have a chronic condition you may have shared one of the many illness memes on social media that attempt to explain what it is like to live with constant pain. The conversations that occur in blog comments or other platforms naturally take on an "us" vs. "them" mentality. We who are ill consider ourselves part of a exclusive club -- one we never wished to join. And it is difficult to believe...
Source: Healthy Living - The Huffington Post - Category: Consumer Health News Source Type: news

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Authors: Gentile E, Ricci K, Delussi M, Brighina F, de Tommaso M Abstract Previous studies indicated changes of motor cortex excitability in fibromyalgia (FM) patients and the positive results of transcranial stimulation techniques. The present study aimed to explore the metabolism of motor cortex in FM patients, in resting state and during slow and fast finger tapping, using functional Near-Infrared Spectroscopy (fNIRS), an optical method which detects in real time the metabolism changes in the cortical tissue. We studied 24 FM patients and 24 healthy subjects. We found a significant slowness of motor speed in FM ...
Source: Pain Research and Treatment - Category: Anesthesiology Tags: Pain Res Treat Source Type: research
Conclusions: The developed web DB system contributed to improve the health condition of the health program participants by providing necessary information to the health professionals at the right time. This case report could be a reference for other researcher to develop web databases for their own context, especially in developing countries. PMID: 30788180 [PubMed]
Source: Healthcare Informatics Research - Category: Information Technology Tags: Healthc Inform Res Source Type: research
The indications for cryoablation in pediatric patients has been slowly growing over the last few years. Vascular anomalies and solid tumors are being treated with this modality. However, cryoablation can be associated with local complications. This is of high relevance in children due to smaller body surface area, more compact anatomy and less subcutaneous fat. Additionally, these patients have lower tolerance to pain and inflammation. It is critical to understand these factors when using cryoablation to treat pediatric patients.
Source: Journal of Vascular and Interventional Radiology : JVIR - Category: Radiology Authors: Tags: Scientific Session 5: You ’ve Got To Be Kid-ing Me (Pediatric IR) Source Type: research
Pediatric hypertension (HTN) is commonly due to secondary causes such as renal parenchymal disease or renal artery stenosis (RAS). But, the impact of accessory renal arteries on the renin-angiotensin-aldosterone feedback system and potential for causing HTN is not known. First proposed by Glodny et al in 2001, parenchyma supplied by ‘accessory’ vessels may have lower blood pressure (BP) than the dominant renal parenchyma triggering renin secretion. The purpose of this study is to evaluate the safety and efficacy of accessory renal artery embolization (ARAE) in children presenting with suspected renal artery HTN.
Source: Journal of Vascular and Interventional Radiology : JVIR - Category: Radiology Authors: Tags: Scientific Session 5: You ’ve Got To Be Kid-ing Me (Pediatric IR) Source Type: research
Knee OA is a common cause of pain and disability, with many patients relying on chronic pain medications and/or joint injections. These options unfortunately result in short-term relief, or have associated increased morbidity, and knee replacement surgery may ultimately be performed. Researchers have postulated that synovial neovascularity develops as a result of inflammation and subsequently leads to knee pain. While previous overseas reports of success with GAE have been published, we present our final results from a prospective US multicenter clinical trial.
Source: Journal of Vascular and Interventional Radiology : JVIR - Category: Radiology Authors: Tags: Scientific Session 3: Not Your Run-of-the-Mill Embolization Source Type: research
A pulmonary arteriovenous malformation (PAVM) is an anomalous connection between a pulmonary artery and a pulmonary vein that lacks a capillary bed. The most common symptoms of PAVM are dyspnea, exercise intolerance, migraine, stroke or transient ischemic attack, and lung hemorrhage. The treatment of choice is transcatheter embolization with the most common embolic devices being coils (multiple manufacturers) or Amplatzer plugs (AVP) (St. Jude Medical, Plymouth, MN) to occlude the malformation. The newest embolic device for PAVM occlusion is the microvascular plug (MVP) (Micro Vascular Plug System, Medtronic, Minneapolis, MN).
Source: Journal of Vascular and Interventional Radiology : JVIR - Category: Radiology Authors: Tags: Scientific Session 42: Need Some Inspiration Source Type: research
There are no reported descriptions of motor nerve cryoablation in humans. As a result, physicians faced with inadvertent motor nerve cryoablation during palliative or therapeutic procedures for established indications are forced to rely on preclinical studies to manage patient expectations. (1, 2) In addition, potential applications of motor nerve cryoablation, such as for management of spasticity and pain, have been avoided because of the unknown prognosis following cryoneurolysis of mixed or motor nerves.
Source: Journal of Vascular and Interventional Radiology : JVIR - Category: Radiology Authors: Tags: Scientific Session 41: Other Nonvascular Interventions Source Type: research
Ultrasound image-guided procedures (USGP) are common and often cause mild to moderate pain both during the procedure and during lidocaine injection. This 110 participant randomized clinical trial evaluated the effectiveness of vapocoolant topical anesthetic application prior to lidocaine injection at reducing pain during the USGP.
Source: Journal of Vascular and Interventional Radiology : JVIR - Category: Radiology Authors: Tags: Scientific Session 41: Other Nonvascular Interventions Source Type: research
To examine the efficacy of image-guided percutaneous interventions in pain and local tumor control in the treatment of osseous metastases from breast cancer.
Source: Journal of Vascular and Interventional Radiology : JVIR - Category: Radiology Authors: Tags: Scientific Session 31: You ’re So Hip (MSK) Source Type: research
To evaluate the outcomes after computed tomography (CT)-guided sacroiliac (SI) joint injections in patients suspected to have lower back pain from SI joint instability.
Source: Journal of Vascular and Interventional Radiology : JVIR - Category: Radiology Authors: Tags: Scientific Session 31: You ’re So Hip (MSK) Source Type: research
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