Support CF Foundation! Fund drive has reached over 1000 hits per day.

Hello All, This thread is for feedback about a CF Foundation fund drive that I am participating in. We have reached 1000 unique hits per day and hope with this we can make a larger donation. Users shop online like they would anywhere else, and a percent of their purchase goes to the CF Foundation. Donating does not cost you anything extra. If you are planning on buying a Father's Day present online, this is a great time to buy it and help support a good cause. Please provide feedback or suggestions. Products are available from Amazon, Best Buy, Walmart, Sears, Etsy, Sears, Microsoft, Rodale, New Balance, Dyson, Forever 21, Gander Mountain, Follie Follie, and many more. New improved search engine and over 100 new data parters including Macy's, Lego, GameStop, Dyson, and Crocs. Thank you for the support! Here is the FB fan page.
Source: Cystic Fibrosis Community Initiatives Forum - Category: Respiratory Medicine Authors: Tags: Community Initiatives Source Type: forums

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Publication date: Available online 26 June 2019Source: American Journal of Infection ControlAuthor(s): Jeremy S. Stultz, Sandra R. Arnold, Chasity M. Shelton, Bindiya Bagga, Kelley R. LeeAn antimicrobial stewardship program was implemented throughout 2012 at a tertiary pediatric institution with guideline development preceding prospective audit and feedback starting in 2013. Meropenem use decreased over 62% during the next 5 years. Non-cystic fibrosis Pseudomonas aeruginosa isolate susceptibility to meropenem increased from 89% in 2011 to 98% in 2017 (P
Source: American Journal of Infection Control - Category: Infectious Diseases Source Type: research
An estimated 30 million Europeans are affected by rare illnesses such as cystic fibrosis or Huntington’s disease. On February 28, Rare Disease Day, the E.U. launched a new a web-based knowledge-sharing registration platform to give researchers, policymakers, and patients expanded access to data to support better diagnosis and treatment. Around 600 individual rare disease registries exist in Europe, each managed by individual hospitals, research institutions, pharmaceutical companies, or patient advocacy groups. The new platform aims to promote the interoperability of data across these registries.    &...
Source: The Commonwealth Fund: Publications - Category: International Medicine & Public Health Source Type: research
AbstractThe Israeli population mainly includes Jews, Muslim and Christian Arabs, and Druze. Data on genetic diseases present in the population have been systematically collected and are available online in the Israeli national genetic database. Among the Israeli Arabs in December 31 2018, the database included molecular data on six diseases relatively frequent in the whole population: thalassemia, familial Mediterranean fever (FMF), cystic fibrosis, deafness, phenylketonuria or congenital adrenal hyperplasia as well as data on 632 autosomal recessive diseases among Muslim Israeli Arabs, 52 among the Christian Arabs and 79 ...
Source: Human Genetics - Category: Genetics & Stem Cells Source Type: research
This review presents and discusses a new frontier for fast, risk-free and potentially inexpensive diagnostics of respiratory diseases by detecting volatile organic compounds (VOCs) present in exhaled breath. One part of the review is a didactic presentation of the overlaying concept and the chemistry of exhaled breath. The other part discusses diverse sensors that have been developed and used for the detection of respiratory diseases (e.g. chronic obstructive pulmonary disease, asthma, lung cancer, pulmonary arterial hypertension, tuberculosis, cystic fibrosis, obstructive sleep apnoea syndrome and pneumoconiosis) by analy...
Source: European Respiratory Review - Category: Respiratory Medicine Authors: Tags: Pulmonary pharmacology and therapeutics Review Source Type: research
Authors: Sarti F, Wolf K, Talsma J, Pierce-Talsma S PMID: 31233115 [PubMed - in process]
Source: Journal of the American Osteopathic Association - Category: Complementary Medicine Tags: J Am Osteopath Assoc Source Type: research
Conclusion: These findings support the use of OMT as a method for the management of chronic constipation and DIOS in the CF population. However, because of the small population size, more research with larger populations is needed. PMID: 31233114 [PubMed - in process]
Source: Journal of the American Osteopathic Association - Category: Complementary Medicine Tags: J Am Osteopath Assoc Source Type: research
Authors: Gomes DC, Longo E, de Camargo OK, de Sousa Dantas D, Ferreira HN, Regalado ICR, Ribeiro LC, Pereira SA Abstract OBJECTIVE: To identify the most common quality of life instruments for children with cystic fibrosis and link the content with the International Classification of Functioning, Disability and Health (ICF). METHODS: The study was conducted in 2 stages. The first stage involved a review of the literature to select quality of life questionnaires. In the second stage 2 independent reviewers identified questionnaire items and categories corresponding to the ICF, according to approved methodology. T...
Source: Journal of Rehabilitation Medicine - Category: Rehabilitation Tags: J Rehabil Med Source Type: research
Title: FDA Expands Cystic Fibrosis Treatment Approval to Children Ages 6 to 12Category: Health NewsCreated: 6/24/2019 12:00:00 AMLast Editorial Review: 6/25/2019 12:00:00 AM
Source: MedicineNet Lungs General - Category: Respiratory Medicine Source Type: news
(Cleveland Clinic) Implemented in 2005, the lung allocation score is used to prioritize patients awaiting lung transplants in the US. Sicker transplant candidates have a higher calculated score and are placed at the top of the list. But a recent study led by Maryam Valapour, M.D., MPP, director of Lung Transplant Outcomes in Cleveland Clinic's Respiratory Institute, found including new clinical variables helped to better identify the sickest cystic fibrosis and chronic obstructive pulmonary disease patients awaiting transplants.
Source: EurekAlert! - Medicine and Health - Category: International Medicine & Public Health Source Type: news
This study aimed to improve our understanding of the natural history of cystic fibrosis (CF) by comparing lung function and body mass index z-score (zBMI) between patients with different genotypes and identify a genotype with outcomes most comparable to homozygous ΔF508 patients.
Source: Journal of Cystic Fibrosis - Category: Respiratory Medicine Authors: Tags: Original Article Source Type: research
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