Medical Marijuana

I told my cf doctors I use it, and they seem... Disappointed. i don't smoke it. I vaporise it or I eat it through food. Whats your thoughts and opinions about it? After they found out they even began to treat me differently. It's depressing
Source: Cystic Fibrosis Exercise and Fitness Forum - Category: Respiratory Medicine Authors: Tags: Exercise & Fitness Source Type: forums

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Emerging Knowledge for Clinical Practice Podium Presentations focusing on the Research Agenda Priority of Pediatric Research: Chronic Illness, Presented at NAPNAP's 40th National Conference on Pediatric Health Care, March 8, 2019, New Orleans, LA.
Source: Journal of Pediatric Health Care - Category: Pediatrics Authors: Source Type: research
Catherine Farrer from Dulwich, London, is pictured with her daughter Kate, 4, who is a Cystic Fibrosis sufferer. Caring for Kate has exposed her to the worrying realities of antibiotic resistance.
Source: the Mail online | Health - Category: Consumer Health News Source Type: news
In CF, people with higher FEV1 are less aggressively treated with intravenous (IV) antibiotics, with resultant negative impact on their health outcomes. This could be entirely clinician-driven, but patient choice may also influence IV use. In this prospective observational study, we explored IV recommendations by clinicians and IV acceptance by adults with CF to understand how clinical presentations consistent with exacerbations resulted in IV use.
Source: Respiratory Medicine - Category: Respiratory Medicine Authors: Source Type: research
Condition:   Bronchiectasis Adult Interventions:   Drug: Roflumilast;   Drug: Placebo oral tablet Sponsor:   University of Sao Paulo General Hospital Recruiting
Source: ClinicalTrials.gov - Category: Research Source Type: clinical trials
The devastating inherited disease cystic fibrosis (CF) is caused by mutations of the Cystic Fibrosis Transmembrane Conductance Regulator (CFTR) anion channel. The recent approval of the CFTR potentiator drug ivacaftor (Vx-770) for the treatment of CF patients has marked the advent of causative CF therapy. Currently, thousands of patients are being treated with the drug, and its molecular mechanism of action is under intensive investigation. Here we determine the solubility profile and true stimulatory potency of Vx-770 towards wild-type (WT) and mutant human CFTR channels in cell-free patches of membrane. We find that its ...
Source: eLife - Category: Biomedical Science Tags: Structural Biology and Molecular Biophysics Source Type: research
Treatment of patients with Cystic Fibrosis homozygous for the Phe508del gene, with Lumacaftor /Ivacaftor (LUM/IVA) improves outcomes in patients with FEV1  > 40% predicted. We set out to observe the most sensitive...
Source: BMC Pulmonary Medicine - Category: Respiratory Medicine Authors: Tags: Research article Source Type: research
Pseudomonas aeruginosa is an opportunistic pathogen and one of the leading causes of nosocomial infections. Moreover, the species can cause severe infections in cystic fibrosis patients, in burnt victims and caus...
Source: BMC Microbiology - Category: Microbiology Authors: Tags: Research article Source Type: research
by David Hasler, Pinelopi Anagnostopoulou, Sylvia Nyilas, Philipp Latzin, Johannes Schittny, Dominik Obrist The multiple-breath washout (MBW) is a lung function test that measures the degree of ventilation inhomogeneity (VI). The test is used to identify small airway impairment in patients with lung diseases like cystic fibrosis. However, the physical and physiological factors that influence the test ou tcomes and differentiate health from disease are not well understood. Computational models have been used to better understand the interaction between anatomical structure and physiological properties of the lung, but none...
Source: PLoS Computational Biology - Category: Biology Authors: Source Type: research
Pediatric Allergy, Immunology, and Pulmonology,Volume 32, Issue 2, Page 45-51, June 2019.
Source: Pediatric, Allergy, Immunology, and Pulmonology - Category: Respiratory Medicine Authors: Source Type: research
Condition:   Bronchiectasis Adult Interventions:   Drug: Roflumilast;   Drug: Placebo oral tablet Sponsor:   University of Sao Paulo General Hospital Recruiting
Source: ClinicalTrials.gov - Category: Research Source Type: clinical trials
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