Inspiring video of a double lung transplant survivor

Here is a inspiring video of my 35 year old brother who has Cystic Fibrosis and had a double lung transplant 5 years ago. This video was made to document the celebration of the 5 years and to reflect on his life so far. http://youtu.be/OBk_1h3CK-g Or search LUNGIVERSARY on YouTube. Please comment and share if you enjoyed it
Source: Cystic Fibrosis Transplants Forum - Category: Respiratory Medicine Authors: Tags: Transplants Source Type: forums

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A pediatric patient with cystic fibrosis and a double-lung transplant received a genetically engineered 3-phage cocktail to treat a life-threatening antibiotic-resistant Mycobacterium abscessus infection for which all standard therapeutic options had been exhausted. Over 7 months of twice-daily intravenous infusions, as well as daily topical phage therapy, the 15-year-old patient ’s surgical wound and skin lesions healed gradually and her lung and liver function improved. No adverse reactions to the treatment were reported.
Source: JAMA - Category: General Medicine Source Type: research
Conclusion: These results demonstrate the high prevalence of extrapulmonary comorbidities in transplanted CF adult patients particularly CFRD. We highlight the need for specific surveillance and prevention for transplanted CF patients who were already treated for extra espiratory comorbidities before lung transplantation, due to the potential aggravation of their comorbidities after transplantation. PMID: 31267788 [PubMed - as supplied by publisher]
Source: Expert Review of Respiratory Medicine - Category: Respiratory Medicine Tags: Expert Rev Respir Med Source Type: research
Since lung transplantation became a viable option for cystic fibrosis (CF) lung disease, adult transplant recipients with CF have superior survival compared to all the other major diagnostic indications. However, among adults, recipients with CF have a younger age at transplant in comparison to other transplant recipients. Over time, the frequency and proportion of lung transplants for CF has increased for adults in comparison to children. Using a large international transplant registry, we investigated time trends in numbers of transplants, age at transplant, and post-transplant survival and cause of death for recipients with CF.
Source: The Journal of Heart and Lung Transplantation - Category: Transplant Surgery Authors: Tags: Original Clinical Science Source Type: research
New variables ID the sickest waitlist candidates with cystic fibrosis, chronic obstructive pulmonary disease
Source: Pulmonary Medicine News - Doctors Lounge - Category: Respiratory Medicine Tags: Pulmonology, Surgery, Journal, Source Type: news
Elizabeth Dolan, 28, was never expected to live past age 10 due to her incurable lung condition. On February 1, she got a double lung transplant in California and is breathing easier than ever.
Source: the Mail online | Health - Category: Consumer Health News Source Type: news
(Cleveland Clinic) Implemented in 2005, the lung allocation score is used to prioritize patients awaiting lung transplants in the US. Sicker transplant candidates have a higher calculated score and are placed at the top of the list. But a recent study led by Maryam Valapour, M.D., MPP, director of Lung Transplant Outcomes in Cleveland Clinic's Respiratory Institute, found including new clinical variables helped to better identify the sickest cystic fibrosis and chronic obstructive pulmonary disease patients awaiting transplants.
Source: EurekAlert! - Medicine and Health - Category: International Medicine & Public Health Source Type: news
We describe the use of transnasal humidified rapid-insufflation ventilatory exchange for deep sedation during dental extractions in a patient with severe cystic fibrosis as a precondition for lung transplantation. Patient wanted to have the procedure under general anesthesia with intubation due to extreme anxiety. However, we advocated deep IV sedation with transnasal humidified rapid-insufflation ventilatory exchange. Oxygenation was maintained without airway obstruction and pulmonary complications during the entire procedure of 110 minutes.
Source: A&A Case Reports - Category: Anesthesiology Tags: Case Reports Source Type: research
CONCLUSIONS: Adding CF-specific variables improved discrimination among waitlisted CF candidates, and benefitted COPD candidates. PMID: 31199166 [PubMed - as supplied by publisher]
Source: American Journal of Respiratory and Critical Care Medicine - Category: Respiratory Medicine Authors: Tags: Am J Respir Crit Care Med Source Type: research
Source: Journal of Cystic Fibrosis - Category: Respiratory Medicine Authors: Tags: Posters Sessions Source Type: research
Source: Journal of Cystic Fibrosis - Category: Respiratory Medicine Authors: Tags: Posters Sessions Source Type: research
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