mom of a 16 yr old daughter

Junior Member Join DateFeb 2014Posts1 Hi I am also new to this site. I am a mom of a 16 yr old daughter. She has ddf508, mostly weight issues. She is 5'2, 94 lbs. She has a g tube and takes 2-3k calories at night. She also does hyper tonic, pulmozyme, albuterol and the vest. Her dr says she has very mild chrons, but she never has any symptoms and hasn't taken the pentasa for a while. She has maintained her weight and height and fev of 72-4 for the past yr without any hospitalizations. They want her to be at 100lbs. I feel like her GI dr always wants to do unnessecary tests. Now he is saying her lack of weight gain could be inflammation in the intestines, and want another colonoscopy. I think that is not needed and she could just eat breakfast before school and a better lunch after school. She currently just snacks at school.What are you opinions?
Source: Cystic Fibrosis Teenagers and Young People Forum - Category: Respiratory Medicine Authors: Tags: Teenagers and Young People Source Type: forums

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The risk of colorectal cancer (CRC) in patients with cystic fibrosis (PWCF) is 10times greater than the general population and 30times greater post-transplant.
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We report the case of a 37 years old CF patient with DIOS successfully managed by dissolution with Diet Coca-Cola ® instilled via colonoscopy.
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Adults with cystic fibrosis (CF) have been reported to be at five to ten-fold risk (25 to 30 fold risk after solid organ transplant) of colorectal cancer (CRC) than the general population. Limited publications...
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A 36-year-old woman with cystic fibrosis presented to hospital with progressive abdominal pain and vomiting. Computed tomography (CT) imaging of her abdomen revealed a high-grade small bowel obstruction, with a transition point in the mid-to-distal ileum. A nasogastric tube (NGT) was inserted and the patient received PegLyte instillation via NGT and a Gastrograffin enema, without clinical improvement. Ileo-colonoscopy performed ten days after admission revealed inspissated succus causing collapse and obstruction of the terminal ileum.
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Cosmeri Rizzato1, Javier Torres2, Elena Kasamatsu3, Margarita Camorlinga-Ponce2, Maria Mercedes Bravo4, Federico Canzian5 and Ikuko Kato6* 1Department of Translation Research and of New Technologies in Medicine and Surgery, University of Pisa, Pisa, Italy 2Unidad de Investigación en Enfermedades Infecciosas, Unidades Médicas de Alta Especialidad Pediatría, Instituto Mexicano del Seguro Social, Mexico City, Mexico 3Instituto de Investigaciones en Ciencias de la Salud, National University of Asunción, Asunción, Paraguay 4Grupo de Investigación en Biología del C&aacut...
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Adults with cystic fibrosis (CF) should undergo colorectal cancer (CRC) screening with colonoscopy beginning at age 40 and be rescreened every five years, advise consensus recommendations from the Cystic Fibrosis Foundation.Reuters Health Information
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My son has struggled so hard with weight. He is 5'5, and weighs 76 pounds. He is pancreatic insufficent, enzymes are not the issue. He is allergic to gluten, milk, dairy, soy, and rice. Plus he has autism and because of textures and tastes he will only willingly eat 7 foods. He does have a g tube receiving 10-12 hrs feeds a day. Still everytime we gain a few, he ends up loosing them. He tends to hover between 75-77 pounds. gi doc is amazing and has tried just about everything. He and the dietician are speaking with specialists outside the hospital to try to find a new formula with higher calories for him. He even had an al...
Source: Cystic Fibrosis Nutrition Forum - Category: Nutrition Authors: Tags: Nutrition Source Type: forums
Im going to the doctor this week to try and get a recommendation for a cf sweat test. Im worried they may think Im crazy, but I'm so frustrated that I dont know what else to do. Since a child I have been getting sinus infections and bronchitis frequently. My doctor diagnosed me with asthma and put me on antibiotics and that worked for a while. I'm now 22 years old (female) and have started going downhill since 16. I know cystic fibrosis is usually diagnosed as a child but i was not tested at birth and I have read that some milder mutations do not.become severe until later in life. Anyway at 16 I started having severe pain ...
Source: Cystic Fibrosis Teenagers and Young People Forum - Category: Respiratory Medicine Authors: Tags: Teenagers and Young People Source Type: forums
Health care is on the verge of a beautiful disruption. Technology is driving a liberation of data that will fundamentally change our relationship with our patients. In this brief blog, we will: look at technology’s effects on grocery stores (and why we should care), highlight some innovative companies that are disrupting health care, and put it all together to recognize how patients will command more control over health care decisions and spending. But first—grocery stores. Grocery Store Technology Once upon a time, grocery store employees spent an evening each month counting the cereal boxes left upon the s...
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Editor: V. Dimov, M.D., Assistant Professor at University of ChicagoGrey Turner's sign suggesting retroperitoneal haemorrhage. Lancet, 05/2014.Abdominal-Wall Varices in the Budd –Chiari Syndrome. NEJM, 05/2014.Biliary ileus. Lancet, 07/2012.Meconium-like Ileus in Cystic Fibrosis. NEJM, 05/2012.Achalasia. NEJM, 04/2012.Intestinal Infestation with Ancylostoma ceylanicum. NEJM, 03/2012.Kayser-Fleischer Rings in Wilson's Disease. NEJM, 03/2012.Barium Aspiration. NEJM, 03/2012.Pneumopericardium Associated with a Peptic Ulcer. NEJM, 12/2011.Abdominal calcifications secondary to cysticercosis. Lancet, 12/2011.Retinopat...
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