Kids with CF talking to other Kids with CF

HI... My name is Carol and I am trying to see if there is a way for my grandson to talk to other kids with CF? His name is Connor he is 6 years old and very smart :) He has had a rough year due to CF infections, pic lines and last Oct a really bad reaction to antibiotics he was taking. He was in the hospital for almost the whole month of Oct. he had a very difficult time. So now he scared, does not want to go see the doctors at all. I cannot blame him he really did have a difficult time. Also he is at the age and his development where he is asking a lot of questions about CF. He said he is the only one with CF .. no one else in his school has it.. no one in the family has it and he wishes he did not have CF. Of course as a Grandma this broke my heart (U) his parents and I try to make him understand. We have watched many videos on CF and have books for him and also talk to his team at his CF clinic they are all awesome. But Connor still is having a hard time with this.. I really believe he just realized he is different :( I believe if I can find a way to start a blog or pen pal or email any way for kids with CF to talk to each other it would help! I know if Connor could talk with a kid his age or say the ages of 6-10 years old it would help. I think he might only talk or type about Batman but he would know there is another kid out there like him? I want to help out my daughter and her family and of course my Sunshine Connor!! Let me know what you all think and any...
Source: Cystic Fibrosis Families Forum - Category: Respiratory Medicine Authors: Tags: Families Source Type: forums