My grandson is in the Hospital.. I am having one of those days :(

Hi.. you all may have seen my post about kids with CF reaching out to kids with CF. My grandson is 6 yrs old has CF. He is such a amazing kid and so smart. I think he knows more about his meds and schedule than I do! He has sinus issues has always has had a runny nose :) he takes zrytec and cincular plus all his other meds :0 He had a sinus infection and even with predisone and antibiotic he got worse. He was admitted to hospital Sunday for exacerbation of CF .. to me this means he cannot stop coughing! This is hard and because of a terrible reaction to antibiotics last Oct. the docs are being very cautious with what meds they can use now. He is growing strep on the culture and the new culture they took results are not back yet. They suggest having his tonsils removed because he has grown strep a lot over last 6 months. Also they may do a bronchoscopy to see if there is something else he may be growing that does not show up on sputum culture. But they will not be able to do either till he gets better. Docs said may do both in June after school is out. Because I am a sappy Grandma I am having a hard time dealing with this right now. He is doing better and his cough has really slowed down so I am thankful for little things now like no more constant cough! He had a picc line put in today and he totally freaked out!! He is scared and knows what is going on, I asked him why he is so scared of the picc is it because it hurts? Or because he thinks it could hurt he agreed he is ...
Source: Cystic Fibrosis Families Forum - Category: Respiratory Medicine Authors: Tags: Families Source Type: forums