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Family From Ireland Hopes Boston Doctors Can Save Boy’s Life

BOSTON (CBS) — Cian McDonnell-Lynch is just four years old. He’s been given until Christmas to live. His family, saying they refuse to give up, has traveled to Boston Children’s Hospital in the hopes that one of the world’s premiere hospitals can help keep him alive. Cian has been fighting an often deadly bone marrow disorder called Dyskeratosis Congenita since birth. “It’s a very rare disease,” his mother, Lisa McDonnell, told WBZ-TV Tuesday. “It affects one in a million. And Cian is actually at the more severe end of the syndrome.” Cian McDonnell-Lynch and his family in Boston (WBZ-TV) The disease left Cian permanently blind at the age of one. He did get a successful bone marrow transplant two years ago, but the disease is now affecting his lungs with another rare and deadly disorder, microscopic pulmonary AVMS. “They’re actually microscopic blood vessels; they’re malformations,” his mother explained. “And the oxygenated blood is not getting around to his whole body.” “We were told today that it’s actually progressing very quick, so we’re just really really hoping that he’ll be accepted onto the transplant list here in Boston.” Cian has been given only a few months to live. A double-lung transplant would likely save his life, but he was rejected for one at a hospital in London. “He was the first child that they’ve seen with this condi...
Source: WBZ-TV - Breaking News, Weather and Sports for Boston, Worcester and New Hampshire - Category: Consumer Health News Authors: Tags: Health Local News Syndicated Local Cian McDonnell-Lynch Hope For Cian liam martin Source Type: news

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