Sara Weir

PresidentSara Hart Weir, MS, was appointed as the National Down Syndrome Society (NDSS) President in December 2014, after previously serving as the Vice President of Advocacy & Affiliate Relations for NDSS since 2012. Weir is responsible for overseeing the mission and administration of the organization, which is the largest nonprofit in the United States dedicated to advocating for people with Down syndrome and their families. Under Weir’s leadership, NDSS was at the forefront of the passage of the landmark and historical Stephen Beck Jr. Achieving a Better Life Experience (ABLE) Act, which will create tax free savings accounts for people with Down syndrome and other disabilities. This significant law is hailed as the most significant legislation for the disability community since the Americans with Disabilities Act (ADA), over twenty-five years ago. For Weir, the advocacy surrounding the ABLE Act was a civil rights issue, as for the first-time ever, it puts a stake in the ground that individuals with disabilities can save money for the future, work, all while remaining on the necessary benefits that the Down syndrome community relies on. In 2013, Weir was appointed to a three-year term to the Maryland Commission for Effective Community Inclusion of Individuals with Intellectual and Developmental Disabilities by Governor Martin O’Malley. Weir currently serves on the Board of Trustees for Westminster College, President of the Westminster College Alumni Council, and on ...
Source: PHRMA - Category: Pharmaceuticals Authors: Source Type: news