Mothers ’ views on the storage and usage of their children’s biological material under the Danish biobanking model. - A narrative approach using epistemic injustice

The Danish public welfare system ensures health care to all citizens and is renowned internationally for keeping digital health registries. The Danish Neonatal Screening Biobank contains blood from the Phenylketonuria-screening (PKU-test) of nearly all infants born in Denmark. The samples are collected in an opt-out design and are available for general scientific research. Legal, ethical and moral concerns have been raised in several countries of how consent is obtained best in pediatric biobank governance.
Source: Value in Health - Category: International Medicine & Public Health Authors: Source Type: research