A parent’s journey: Incorporating Principles of Palliative Care into Practice for Children with Chronic Neurological Diseases

Rather than in conflict or in competition with the curative model of care, pediatric palliative care is a complementary and interdisciplinary approach used to optimize medical care for the children with complex medical conditions. It provides care to the whole child, including the physical, mental, and spiritual dimensions, in addition to support for the family. Through the voice of a parent, the following case based discussion demonstrates how the fundamentals of palliative care medicine, when instituted early in the course of disease, can assist parents and families with shared medical decision making, ultimately improving the quality of life for children with life limiting illnesses.
Source: Seminars in Pediatric Neurology - Category: Neurology Authors: Source Type: research